Tyrosinemia Type II
Organizations
Are there good support groups for Tyrosinemia Type II?
A support group for Tyrosinemia Type II is the Network Of Tyrosinemia Advocates (NOTA): http://notacares.org. The National Organization of Rare Diseases (NORD) also connects people with support groups for rare genetic conditions.
References
- http://notacares.org
- https://rarediseases.org/organizations/rare-diseases-clinical-research-network/
More Organizations Content
Where do I find other people with Tyrosinemia Type II?
How do I start a support group for Tyrosinemia Type II?
Where do I find other people with Tyrosinemia Type II?
RareConnect (https://www.rareconnect.org/en) and Patients Like Me (https://www.patientslikeme.com) allow people to start a discussion and find others with Tyrosinemia Type II.
References
- https://www.rareconnect.org/en
- https://www.patientslikeme.com
How do I start a support group for Tyrosinemia Type II?
The National Organization of Rare Diseases (NORD) has instructions on their web site for starting a patient advocacy organization. Opportunities for joining others with Tyrosinemia Type II can be accessed through RareConnect (https://www.rareconnect.org/en) and Patients Like Me (https://www.patientslikeme.com). Global Genes' Toolkits (https://globalgenes.org/toolkits/so-you-think-you-want-to-start-a-nonprofit/so-you-think-you-want-to-start-a-nonprofit-2/) also have suggestions for how to start a support group.
References
- https://www.rareconnect.org/en
- http://www.patientslikeme.com
- https://rarediseases.org/organizations/rare-diseases-clinical-research-network/
