Tyrosinemia Type I


Are there good support groups for Tyrosinemia Type I?

Support groups for Tyrosinemia Type I include The Network Of Tyrosinemia Advocates (NOTA): http://notacares.org.

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Where do I find other people with Tyrosinemia Type I?

Where do I find other people with Tyrosinemia Type I?

To find other people with Tyrosinemia Type I, refer to RareConnect (https://www.rareconnect.org/en) which allows people to start a discussion and find others with Tyrosinemia Type I. Patients Like Me (https://www.patientslikeme.com) is also another good resource.

  • https://www.rareconnect.org/en
  • https://www.patientslikeme.com

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