Tyrosinemia Type I
Organizations
Are there good support groups for Tyrosinemia Type I?
Support groups for Tyrosinemia Type I include The Network Of Tyrosinemia Advocates (NOTA): http://notacares.org.
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Where do I find other people with Tyrosinemia Type I?
Where do I find other people with Tyrosinemia Type I?
To find other people with Tyrosinemia Type I, refer to RareConnect (https://www.rareconnect.org/en) which allows people to start a discussion and find others with Tyrosinemia Type I. Patients Like Me (https://www.patientslikeme.com) is also another good resource.
References
- https://www.rareconnect.org/en
- https://www.patientslikeme.com
