Tyrosinemia Type I

Clinical Research/Studies

Is there clinical research going on for Tyrosinemia Type I?

As of January 11, 2016, there are not clinical trials being conducted for Tyrosinemia Type I in the U.S.

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How do I find clinical research in Tyrosinemia Type I?

How do I give money to help research in Tyrosinemia Type I?

How do I find clinical research in Tyrosinemia Type I?

Information on current clinical trials is posted on the Internet at www.clinicaltrials.gov. All studies receiving U.S. Government funding, and some supported by private industry, are posted on this government web site.

For information about clinical trials being conducted at the NIH Clinical Center in Bethesda, MD, contact the NIH Patient Recruitment Office:

Tollfree: (800) 411-1222

TTY: (866) 411-1010

Email: prpl@cc.nih.gov

For information about clinical trials sponsored by private sources, contact:

www.centerwatch.com

Ongoing research related to tyrosinemia type 1 is being conducted at Universite Laval in Quebec, Canada. For information, contact:

Robert M. Tanguay, D.Sc.

Professor and Associate Head

Dept. Molecular Biology, Medical Biochemistry & Pathology

Lab Cell & Developmental Genetics

Universite Laval, Quebec, Canada

Phone: 418 656-3339

Fax 418 656-5036

Email: robert.tanguay@ibis.ulaval.ca

http://www.fmed.ulaval.ca/depmed/index.php?id=115

How do I give money to help research in Tyrosinemia Type I?

To support research for Tyrosinemia Type I, donations can be made to The National Organization for Tyrosinemia Advocates (http://notacares.org/) and Joshua’s Cure (https://sites.google.com/site/joshuascure1/).

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