Trisomy x
Organizations
Are there good support groups for trisomy X?
There are various groups that support individuals and families of girls and women with trisomy X. The Association for X and Y Chromosome Variations has a list of support groups on their Local Support Groups page. They also have a list of International Support Groups.
References
- http://www.genetic.org/
More Organizations Content
Where do I find other people with trisomy X?
Where do I find other people with trisomy X?
There are several ways to find other girls and women with trisomy X. Support groups are an excellent way to connect individuals with trisomy X to one another. There are various groups that support individuals and families of girls and women with trisomy X. The Association for X and Y Chromosome Variations has a list of support groups on their Local Support Groups page. They also have a list of International Support Groups.
Alternatively, you can ask your doctor if he or she knows of other patients with a diagnosis of trisomy X. This might help connect you to someone local who has the same diagnosis.