Trisomy x

Clinical Research/Studies

Is there clinical research going on for trisomy X?

There are several researchers interested in studying trisomy X. As of October 2016, there are a handful of studies listed at www.clinicaltrials.gov in regards to trisomy X. Many are focused on the psychiatric basis of the condition, and others are seeking to develop or improve prenatal screening for this and other chromosome disorders. To find current studies on trisomy X that are recruiting subjects, go to www.clinicaltrials.gov and type "trisomy X" in the search box.

The Focus Foundation is an organization that is dedicated to research and advocacy to help families of children with X and Y chromosome variations, including children with trisomy X. Their research studies web page lists current, ongoing research that supports their mission. At this time, they have a study listed through the National Institute of Mental Health (NIHM) studying the effects of sex chromosomes on brain development. For more information about this study, see the study home page at the NIHM website, which can be found here.

References
  • http://www.clinicaltrials.gov
  • http://thefocusfoundation.org/
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How do I find clinical research on trisomy X?

How do I give money to help with research on trisomy X?

How do I find clinical research on trisomy X?

To find current studies on trisomy X that are recruiting subjects, go to www.clinicaltrials.gov and type "trisomy X" in the search box.

The Focus Foundation is an organization that is dedicated to research and advocacy to help families of children with X and Y chromosome variations, including children with trisomy X. Their research studies web page lists current, ongoing research that supports their mission.

References
  • http://thefocusfoundation.org/
  • http://www.clinicaltrials.gov
How do I give money to help with research on trisomy X?

If you would like to donate money to help advance research on trisomy X, there are a few options. The Focus Foundation is an organization that is dedicated to research and advocacy to help families of children with X and Y chromosome variations, including children with trisomy X. You can make donations and support this organization in other ways by visiting their "Get Involved" page on their website.

Unique Rare Chromosome Disorders Support Group is another organization that supports individuals and families with rare chromosome disorders such as trisomy X. To make a donation to Unique, check out their donation web page.

The Association for X and Y Chromosome Variations is another organization that seeks to meet the needs and improve the lives of individuals and families affected by X and Y chromosome aneuploidies including trisomy X. To donate to their cause, check out their donation web page.

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