Trisomy 8q

Organizations

Are there good support groups for trisomy 8q?

Be sure to check with your healthcare team for support groups in your area. It may be difficult to find other families with trisomy 8q since it is such a rare disorder. There are support groups available for people with different types of trisomies. One such group is called Trisomy Online and can be found at http://www.trisomyonline.org/families.htm. Another is called Unique and can be found at http://www.rarechromo.org/html/home.asp.

If you are a parent that has lost a child with trisomy 8q, there are many online support groups that may fit this need. Share is an organization that has resources for parents after loss in addition to organizing support groups. They can be found at http://nationalshare.org/. Compassionate Friends is another organization that offers similar resources: http://www.compassionatefriends.org/Find_Support.aspx. If the child was lost before birth, Helping After Neonatal Death (HAND) is an organization that offers support for parents: http://handonline.org/.

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Where do I find other people with trisomy 8q?

Where do I find other people with trisomy 8q?

Start by checking with your healthcare team for resources in your area. You can also join an online support group, such as a group for people with different types of trisomies. One such group is called Trisomy Online and can be found at http://www.trisomyonline.org/families.htm. Another is called Unique and can be found at http://www.rarechromo.org/html/home.asp.

You may also be able to connect with other family on Facebook by searching for 'trisomy 8q' or '8q duplication'.

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