Trisomy 20p

Organizations

Are there good support groups for trisomy 20p?

Be sure to check with your healthcare team for support groups in your area. It may be difficult to find other families experiencing trisomy 20p since it is a rare condition.

There are support groups available for people with different types of trisomies. One such group is called Trisomy Online and can be found at http://www.trisomyonline.org/families.htm.

If you are a parent who has lost a child with trisomy 20p, there are many online support groups that may benefit you. Share is an organization that has resources for parents after loss. It also organizes support groups. They can be found at http://nationalshare.org/. Compassionate Friends is another organization with similar resources: http://www.compassionatefriends.org/Find_Support.aspx

If your child was lost before birth, Helping After Neonatal Death (HAND) is an organization that offers support for parents: http://handonline.org/.

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Where do I find other people with trisomy 20p?

Where do I find other people with trisomy 20p?

To find other people with trisomy 20p, start by checking with your healthcare team for resources in your area. You can also join an online support group, such as a group for people with different types of trisomies. One such group is called Trisomy Online and can be found at http://www.trisomyonline.org/families.htm.

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