Treacher-collins syndrome

Clinical Research/Studies

How do I find clinical research in Treacher Collins syndrome (TCS)?

To access current clinical research on Treacher Collins syndrome (TCS), patients and families may visit www. clinicaltrials.gov. Family support group websites such as http://www.facesofchildren.org may also provide information on available research studies. Patients may also learn about upcoming clinical trials from their health care providers who specialize in treating those with TCS.

References
  • Treacher Collins Syndrome - NORD (National Organization for Rare Disorders). (2013). Retrieved February 29, 2016, from http://rarediseases.org/rare-diseases/treacher-collins-syndrome/
  • Katsanis SH, Jabs EW. Treacher Collins Syndrome. 2004 Jul 20 [Updated 2012 Aug 30]. In: Pagon RA, Adam MP, Ardinger HH, et al., editors. GeneReviews® [Internet]. Seattle (WA): University of Washington, Seattle; 1993-2016. Available from: http://www.ncbi.nlm.nih.gov/books/NBK1532/
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How do I give money to help research in Treacher Collins syndrome?

How do I give money to help research in Treacher Collins syndrome?

To donate towards clinical research in Treacher Collins syndrome (TCS), individuals may visit websites such as NORD (National Organization for Rare Disorders) http://rarediseases.org. Those interested in fundraising for a TCS support group should contact their support group of choice to learn more about how to organize/ participate in a fundraising event. A donation can also be made to a hospital or clinic that specializes in treating those with TCS.

References
  • Treacher Collins Syndrome - NORD (National Organization for Rare Disorders). (2013). Retrieved February 29, 2016, from http://rarediseases.org/rare-diseases/treacher-collins-syndrome/
  • Katsanis SH, Jabs EW. Treacher Collins Syndrome. 2004 Jul 20 [Updated 2012 Aug 30]. In: Pagon RA, Adam MP, Ardinger HH, et al., editors. GeneReviews® [Internet]. Seattle (WA): University of Washington, Seattle; 1993-2016. Available from: http://www.ncbi.nlm.nih.gov/books/NBK1532/

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