Riley-day syndrome

Many children with special health care needs qualify for help through Medicaid or Medicare. Some states also have special medical plans just for children who have special health care needs but don't qualify for Medicaid of Medicare. Children's hospitals also often have financial aid for families who can't afford their medical expenses. In addition, many disease specific support groups have patient assistance funds. Begin by talking with your doctor, nurse, social worker, and genetic counselor about possible assistance funds they know. Then talk with the medical center or office's billing team to learn more about patient assistance funds and payment plans. Additionally, talk to national or local support groups that work with the genetic condition (or group of conditions) affecting you or your family. You may also search your area for foundations that cover specific regions such as the Marlee Factor Foundation that has a health grant program for families in the Southern Ohio area.