Is there clinical research going on for Phelan-McDermid syndrome?
As of January 19, 2016, there is clinical research for Phelan-McDermid syndrome. You can find ongoing clinical research by contacting the Phelan-McDermid Syndrome Foundation or the United Stated National Institutes of Health.
More Clinical Research/Studies Content
How do I find clinical research for Phelan-McDermid syndrome?
As of June 2016 clinical research can be found on the following:
1) Deletion 22q13 Foundation and Support Group
For information on potential participation in these studies or for more general information concerning this research, physicians and parents may contact:
Katy Phelan, Ph.D., FACMG. Director,Cytogenetics, Molecular Pathology Laboratory Network
250 East Broadway
Maryville, TN 37804
Gail Stapleton, MS, C.G.C
Greenwood Genetic Center/Greenville
2 Doctors Drive
Greenville, SC 29605
Chair, New Members Committee, 22q13 Deletion Support Group
2) https://clinicaltrials.gov/ These are studies receiving US government funding. Some studies are supported by private industries.
3) Clinical trials are conduct at the National Institute of Health Clinical Center in Bethesda, MD. One can contact the recruitment office at (800)411-1222, (866)411-1010, or email@example.com
4) To learn about clinical trials sponsored by private sources, you can contact CenterWatch