Noonan syndrome

Organizations

Are there support groups for Noonan syndrome?

There are several support groups for Noonan syndrome.

Noonan syndrome Foundation www.teamnoonan.org

RASopathiesNET https://rasopathiesnet.org/

References
  • www.teamnoonan.org
  • https://rasopathiesnet.org/
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How do I find other people with Noonan syndrome?

What websites have good information about Noonan syndrome?

How do I find other people with Noonan syndrome?

Your can find other individuals with Noonan syndrome by visiting support groups. Two great resources are below:

Noonan syndrome Foundation

www.teamnoonan.org

RASopathiesNET

https://rasopathiesnet.org/

Speak to a genetic counselor to learn more about support groups for Noonan syndrome.

References
  • https://rasopathiesnet.org/
  • www.teamnoonan.org
What websites have good information about Noonan syndrome?

You can learn more about Noonan syndrome by visiting the following websites:

Noonan syndrome Foundation

www.teamnoonan.org

Genetics Home Reference

https://ghr.nlm.nih.gov/condition/noonan-syndrome

National Organization for Rare Disorders (NORD) - Noonan syndrome

https://rarediseases.org/rare-diseases/noonan-syndrome/

RASopathiesNET

https://rasopathiesnet.org/

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