Niemann-pick types a/b
Organizations
Are there good support groups for individuals and families with Niemann-Pick disease (SMPD1-associated)?
There are multiple support organizations that can be helpful for people with Niemann-Pick disease(SMPD1-associated), including:
- National Niemann-Pick Disease Foundation (www.nnpdf.org)
- Center for Jewish Genetic Disorders (www.jewishgenetics.org)
- Children Living with Inherited Metabolic Diseases (CLIMB) (www.climb.org.uk)
- National Tay-Sachs and Allied Diseases Association (http://ntsad.org/)
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Where do I find other people with Niemann-Pick disease (SMPD1-associated)?
Where do I find other people with Niemann-Pick disease (SMPD1-associated)?
You can start finding other people with Niemann-Pick disease (SMPD1-associated) by looking at the support organizations for the disease:
- National Niemann-Pick Disease Foundation (www.nnpdf.org)
- Center for Jewish Genetic Disorders (www.jewishgenetics.org)
- Children Living with Inherited Metabolic Diseases (CLIMB) (www.climb.org.uk)
- National Tay-Sachs and Allied Diseases Association (http://ntsad.org/)
