Holocarboxylase synthetase deficiency
Organizations
Are there good support groups for people with holocarboxylase synthetase deficiency syndrome?
The following organizations offer resources and support to patients and families with holocarboxylase synthetase deficiency:http://www.oaanews.org/
- Organic Acidemia Association (OAA) - A national patient organization for inherited metabolic disorders. http://www.oaanews.org/
- Climb - An international patient organization for inherited metabolic disorders. http://www.climb.org.uk/