HMG-CoA lyase deficiency

Organizations

Are there good support groups for HMG-CoA lyase deficiency?

Support for individuals and families with HMG-CoA lyase deficiency can be found through the following organizations.

FOD (Fatty Oxidation Disorder) Family Support Group

Telephone: 517-381-1940

E-mail: deb@fodsupport.org

Website: http://www.fodsupport.org

Genetic Metabolic Dietitians International

E-mail: info@gdmi.org

Website: http://www.gmdi.org/

Organic Acidemia Association

Telephone: 763-559-1797

E-mail: mkstagni@gmail.com

Website: http://www.oaanews.org/

References
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Where do I find people with HMG-CoA lyase deficiency?

Where do I find people with HMG-CoA lyase deficiency?

While there is currently no support group specifically for HMG-CoA lyase deficiency, there are other groups that help provide support for families with many metabolic conditions, including HMG-CoA lyase deficiency. See below for

FOD (Fatty Oxidation Disorder) Family Support Group

Telephone: 517-381-1940

E-mail: deb@fodsupport.org

Website: http://www.fodsupport.org

Organic Acidemia Association

Telephone: 763-559-1797

E-mail: mkstagni@gmail.com

Website: http://www.oaanews.org/

References

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