Fetal hydantoin syndrome

Healthcare/Doctors

How do I find a center of excellence in Fetal Hydantoin?

It may be best to seek out a maternal fetal medicine (MFM) specialist in your area. MFM specialists work with women who have chronic health problems, like epilepsy, to keep the mom healthy as she goes through pregnancy.

References
  • https://www.smfm.org/members/what-is-a-mfm
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What specialist doctors should I see with Fetal Hydantoin?

If I have Fetal Hydantoin, what should my doctor know about managing the disease?

What specialist doctors should I see with Fetal Hydantoin?

Children with Fetal Hydantoin should see a neurologist to assess developmental delay. It may be necessary to see a craniofacial team to fix a cleft lip or a cardiologist to fix a heart defect.

The healthcare team for treatment of Fetal Hydantoin Syndrome can include pediatricians, oral surgeons, plastic surgeons, neurologists, psychologists, and therapists.

References
  • https://rarediseases.org/rare-diseases/fetal-hydantoin-syndrome/
If I have Fetal Hydantoin, what should my doctor know about managing the disease?

Your doctor should know to continuously monitor growth and intellectual abilities to be sure you are getting all the help you need.

References
  • https://rarediseases.org/rare-diseases/fetal-hydantoin-syndrome/

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