Fabry disease

Living with

Can I get on disability if I have Fabry disease?

Some people living with classic Fabry disease have life impacting symptoms, do not work, and are on disability. Usually people who qualify have severe pain that is not responding to therapy, severe heart disease, severe kidney disease, severe lung problems, strokes impacting their thought processes, or are not able to walk or stand. If someone living with Fabry disease feels that they are unable to work, there are guidelines to help them apply for disability. First time claims are frequently declined, but working with a disability lawyer on appeal may reverse that decision.

For more information about disability benefits, please refer to the Social Security Administration website. The Fabry support groups: Fabry Support and Information Group and the National Fabry Disease Foundation also may have suggestions and tips for how best to apply for disability due to Fabry related complications.

Emory University Fact Sheet, updated 7/9/2015

Social Security Administration - Benefits for People with Disabilities. (n.d.). Retrieved from https://www.ssa.gov/disability/.

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