Cri-du-chat syndrome
Organizations
Are there good support groups for Cri-du-chat syndrome?
There are online support groups for people with Cri-du-chat syndrome and their families. One such group is called 5p Minus Society and can be found at: http://www.fivepminus.org
There is another group called the Cri-du-chat Support Group of Australia that offers resources and support. The link is: https://criduchat.org.au/
There are a variety of other support groups that may be helpful for individuals with Cri-du-chat syndrome and their families. A list of other organizations that may be helpful can be found at: http://www.criduchat.org/index.php/resources/organizations/
Genetic counselors are often able to inform families of good local, regional, national and online resources for genetic conditions including Cri-du-chat syndrome. The National Society of Genetic Counselors website has a searchable "Find a Genetic Counselor" directory to help locate genetic counseling services throughout the United States and Canada.
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Where do I find other people with Cri-du-chat syndrome?
Where do I find other people with Cri-du-chat syndrome?
You may first want to ask your healthcare team if they know of resources or support groups in your area. You can also join online support groups who can connect you with other families who have a family member with Cri-du-chat syndrome. Some groups are:
- 5p Minus Society: http://www.fivepminus.org
- Cri-du-chat Support Group of Australia: https://criduchat.org.au/
- There are also many support groups for families of children with special needs. A list of other organizations that may be helpful can be found at: http://www.criduchat.org/index.php/resources/organizations/
Genetic counselors are often able to help families find good local, regional, national and online resources for genetic conditions including Cri-du-chat syndrome. Genetic counselors in the United States can be found on the National Society of Genetic Counselors website. Genetic counselors in Canada can be found at the Canadian Association of Genetic Counselors website.
