Chromosome 1p36 deletion syndrome

Organizations

Are there any support groups for chromosome 1p36 microdeletion syndrome?

There are support groups for chromosome 1p36 microdeletion syndrome. See the list below for contact information.

1p36 Deletion Support & Awareness

Address: 906 NE Greenwood Ave.

Bend, OR 97701

Email Address: info@1p36dsa.org

Website: http://www.1p36dsa.org

Chromosome Disorder Outreach (CDO)

PO Box 724

Boca Raton FL 33429-0724

Phone: 561-395-4252 (Family Helpline)

Email: info@chromodisorder.org

Website: www.chromodisorder.org

Unique: The Rare Chromosome Disorder Support Group

G1 The Stables

Station Road West

Oxted Surrey RH8 9EE

United Kingdom

Phone: +44 (0) 1883 723356

Email: info@rarechromo.org or rarechromo@aol.com

Website: www.rarechromo.org

Link for a pamphlet on chromosome 1p36 microdeletion syndrome at: http://www.rarechromo.org/information/Chromosome%20%201/1p36%20deletions%20FTNP.pdf

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