Bloom syndrome

Clinical Research/Studies

Is there clinical research going on for Bloom syndrome?

The best way to learn about current research projects is by keeping in close contact with the support groups focused on Bloom Syndrome. Two key groups are: Bloom's Syndrome Association (http://www.bloomssyndromeassociation.org) and Bloom's Syndrome Foundation (www.bloomssyndrome.org) One important research project is Dr. James German and Dr. Maureen Sanz's registry for people with Bloom syndrome with the intent to conduct research and as a way to organize information from their many years studying the disease and meeting people with the condition. For current clinical research trials in the United States also see clinicaltrials.gov.

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How do I find clinical research in Bloom syndrome?

How do I find clinical research in Bloom syndrome?

Clinical research trials can be found by searching for ‘Bloom syndrome’ on https://clinicaltrials.gov/.

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