Is there clinical research going on for biotinidase deficiency?
For the most up to date clinical trials for biotinidase deficiency, visit clinicaltrials.gov . As of July 2019, there were four completed trials listed.
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How do I find clinical research in biotinidase deficiency?
The website clinicaltrials.gov is a registry and results database of both publicly and privately supported clinical trials in human participants and includes sites around the world. Search "biotinidase deficiency" for updated information about possible clinical research opportunities related to biotinidase deficiency.
How do I give money to help research in biotinidase deficiency?
There are multiple support and education organizations related to newborn screening, inborn errors of metabolism and patient support and educational organizations that include biotinidase deficiency. If you are considering donating to a specific group or organization, http://www.charitynavigator.org provides information on over 8000 American organizations, including rating the organization's financial health as well as accountability and transparency.