Bilateral renal agenesis

Organizations

Are there good support groups for people affected by bilateral renal agenesis?

Because babies with bilateral renal agenesis rarely live into childhood, there are few support groups specific to the condition.

Facebook has a closed group called, "Bi-Lateral Renal Agenesis (Potters Syndrome)". They say they are "A group for discussion with others that have been touched by loss due to Potters Syndrome. And to hopefully answer any questions that you may have." You can find them at https://www.facebook.com/groups/37126760216/.

For parents of those who have experienced the death of an infant or the loss of a pregnancy related to any cause including bilateral renal agenesis, you may wish to be involved with Helping After Neonatal Death. ( http://www.handonline.org/resources.html )

More Organizations Content

We use cookies to ensure that we give you the best experience on our website. By continuing to browse this site, you are agreeing to our use of cookies.

Continue Find out more about our use of cookies and similar technology

This content comes from a hidden element on this page.

The inline option preserves bound JavaScript events and changes, and it puts the content back where it came from when it is closed.

Remember Me