Bethlem Myopathy
Clinical Research/Studies
Is there clinical research happening on Bethlem myopathy?
As of February 2019, there is clinical research happening on Bethlem myopathy. The website, www.clinicaltrials.gov provides the most up to date information regarding ongoing research and clinical trials for Bethlem myopathy. The Muscular Dystrophy Association, Cure CMD, Muscular Dystrophy UK, Muscular Dystrophy Canada, and Muscular Dystrophy Australia also provide information about research for muscular dystrophies, including Bethlem myopathy.
References
- Lampe AK, Flanigan KM, Bushby KM, et al. Collagen Type VI-Related Disorders. 2004 Jun 25 [Updated 2012 Aug 9]. In: Adam MP, Ardinger HH, Pagon RA, et al., editors. GeneReviews® [Internet]. Seattle (WA): University of Washington, Seattle; 1993-2019.Available from: https://www.ncbi.nlm.nih.gov/books/NBK1503/
More Clinical Research/Studies Content
How do I find clinical research on Bethlem myopathy?
How do I give money to help research in Bethlem myopathy?
How do I find clinical research on Bethlem myopathy?
Clinical research on Bethlem myopathy can be found on the website www.clinicaltrials.gov. This website provides the most up to date information regarding ongoing clinical research and clinical trials.The Muscular Dystrophy Association, Cure CMD, Muscular Dystrophy UK, Muscular Dystrophy Canada, and Muscular Dystrophy Australia also provide up to date information regarding research for muscular dystrophies.
References
- Lampe AK, Flanigan KM, Bushby KM, et al. Collagen Type VI-Related Disorders. 2004 Jun 25 [Updated 2012 Aug 9]. In: Adam MP, Ardinger HH, Pagon RA, et al., editors. GeneReviews® [Internet]. Seattle (WA): University of Washington, Seattle; 1993-2019.Available from: https://www.ncbi.nlm.nih.gov/books/NBK1503/
How do I give money to help research in Bethlem myopathy?
There are many different ways to donate money to help research in Bethlem myopathy. You can donate money to muscular dystrophy foundations, such as the Muscular Dystrophy Association, Cure CMD, Muscular Dystrophy UK, Muscular Dystrophy Canada, and Muscular Dystrophy Australia. You can also donate to help fund research in rare disease in general through National Organization of Rare Disorders (NORD).
References
- Muscular Dystrophy Association, https://www.mda.org/ Accessed 27FEB19
- Cure CMD, https://www.curecmd.org/ Accessed 27FEB19
- Muscular Dystrophy UK, https://www.musculardystrophyuk.org/ Accessed 27Feb19
- Muscular Dystrophy Canada, http://www.muscle.ca/ Accessed 27FEB19
- Muscular Dsytrophy Australia, https://www.mda.org.au/ Accessed 27FEB19
- National Organization of Rare Disorders (NORD), https://rarediseases.org/ Accessed 27FEB19
