Beta-thalassemia
Organizations
Are there good support groups for beta-thalassemia?
The Cooley's Anemia Foundation offers several different ways to connect with others living with beta-thalassemia. There are 11 local chapters under the Cooley's Anemia Foundation. The foundation also hosts an annual Care Walk for the beta-thalassemia foundation to raise money and connect patients and families. Visit www.cooleysanemia.org to find resources nearest to you.
References
- Cooley's anemia foundation [Internet] [updated 2016]. Available from: http://cooleysanemia.org.
More Organizations Content
Where can I find more information about beta-thalassemia?
Where can I find more information about beta-thalassemia?
Cooley's Anemia Foundation
330 Seventh Avenue #900
New York NY 10001
Phone: 800-522-7222 (toll-free)
Fax: 212-279-5999
Email: info@cooleyanemia.org
Thalassaemia International Federation (TIF)
PO Box 28807
Nicosia 2083 Cyprus
Phone: +357 22 319129
Fax: +357 22 314552
Email: thalassaemia@cytanet.com.cy
National Haemoglobinopathy Registry
MDSAS NHR Administrator
5 Union Street
City View House
Manchester M12 4JD
United Kingdom
Phone: 0161 277 7917
Email: support@mdsas.com
