Beta-thalassemia

Organizations

Are there good support groups for beta-thalassemia?

The Cooley's Anemia Foundation offers several different ways to connect with others living with beta-thalassemia. There are 11 local chapters under the Cooley's Anemia Foundation. The foundation also hosts an annual Care Walk for the beta-thalassemia foundation to raise money and connect patients and families. Visit www.cooleysanemia.org to find resources nearest to you.

References
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Where can I find more information about beta-thalassemia?

Where can I find more information about beta-thalassemia?

Cooley's Anemia Foundation

330 Seventh Avenue #900

New York NY 10001

Phone: 800-522-7222 (toll-free)

Fax: 212-279-5999

Email: info@cooleyanemia.org

www.cooleysanemia.org

Thalassaemia International Federation (TIF)

PO Box 28807

Nicosia 2083 Cyprus

Phone: +357 22 319129

Fax: +357 22 314552

Email: thalassaemia@cytanet.com.cy

www.thalassaemia.org.cy

National Haemoglobinopathy Registry

MDSAS NHR Administrator

5 Union Street

City View House

Manchester M12 4JD

United Kingdom

Phone: 0161 277 7917

Email: support@mdsas.com

www.nhr.nhs.uk

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