Are there any centers of excellence in Beckwith-Wiedemann syndrome?
As of June 2016, there are no hospitals or clinics which are specifically designated as a "Center of Excellence" in Beckwith-Wiedemann syndrome. Nonetheless, there are some doctors and researchers that specialize in Beckwith-Wiedemann syndrome. Ideally, individuals with Beckwith-Wiedemann syndrome should be followed by a medical geneticist. Medical geneticists are physicians who specialize in diagnosing and managing genetic disorders. A medical geneticist will be familiar with Beckwith-Wiedemann syndrome and will be able to answer families' questions and take proper care of the affected individual. A medical geneticist can be found by asking your doctor for a referral or looking on the American College of Medical Geneticists website .