Barth syndrome
Organizations
Are there good support groups for people with Barth syndrome?
In the U.S., the Barth Syndrome Foundation advocates for people with the condition, and their website is https://www.barthsyndrome.org/home. In Canada, the Barth Syndrome Foundation of Canada leads this work and is available at http://www.barthsyndrome.ca/home.
References
- The Barth Syndrome Foundation of Canada. Retrieved September 25, 2017 from http://www.barthsyndrome.ca/home.
- The Barth Syndrome Foundation. Retrieved September 25, 2017 from https://www.barthsyndrome.org/home.
