Barth syndrome


Are there good support groups for people with Barth syndrome?

In the U.S., the Barth Syndrome Foundation advocates for people with the condition, and their website is In Canada, the Barth Syndrome Foundation of Canada leads this work and is available at


More Organizations Content

We use cookies to ensure that we give you the best experience on our website. By continuing to browse this site, you are agreeing to our use of cookies.

Continue Find out more about our use of cookies and similar technology

This content comes from a hidden element on this page.

The inline option preserves bound JavaScript events and changes, and it puts the content back where it came from when it is closed.

Remember Me