Is there clinical research going on for Bardet-Biedl Syndrome?
At ClinicalTrials.gov is a list of research trials—completed and recruiting—related to Bardet-Biedl syndrome. If the link does not work, one may search Bardet-Biedl syndrome at www.clinicaltrials.gov to find related studies.
As of February 2016 there were four studies still recruiting people with Bardet-Biedl syndrome.
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How do I give money to help research in Bardet-Biedl Syndrome?
Go online to visit the Bardet-Biedl syndrome association foundation to donate. Donations will go towards supporting research in treatment and care and education and outreach to families, physicians, and educators. Its page is found at http://www.bardetbiedl.org/donate/.