Clinical Research/Studies

Is there clinical research happening on argininemia?

As of June 2019, there were clinical trials specific to argininemia listed on, a government website that provides regularly updated information about federally and privately supported clinical trials.

For the most up-to-date list, contact clinical and search for argininemia or urea cycle disorders.

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How do I find clinical research on argininemia?

How do I find clinical research on argininemia?

To learn about ongoing clinical research into argininemia ask a physician who specializes in the disorder. Genetic counselors and medical geneticists are also excellence sources of information about ongoing clinical trials and can offer advice about the pros and cons about participating in such a trial.

Ongoing studies for argininemia can also be found on, a service of the U.S. National Institutes of Health. In Europe, the EU Clinical Trial Register performs a similar service.

Support groups also have information about ongoing clinical trials as well as information and advice about participating in clinical trials. Support groups for argininemia include the National Urea Cycle Disorders Foundation.

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