Androgen insensitivity syndrome
Are there support groups and organizations for androgen insensitivity syndrome?
There are support groups for androgen insensitivity syndrome (AIS):
- AIS-DSD: http://aisdsd.org
- Intersex Society of North America: http://www.isna.org/faq/conditions/ais
- AISSG: http://www.aissg.org
- Accord Alliance: http://www.accordalliance.org/
There is also an annual conference which patients and their families may attend. To learn more about each support group, please visit their websites. Also, a Handbook for Parents is published for parents of children with disorders of sex development (DSD), which includes AIS, and can be found at http://www.accordalliance.org/dsdguidelines/parents.pdf.