Andersen-tawil syndrome

Organizations

Are there good support groups for Andersen-Tawil Syndrome?
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Where do I find other people with Andersen-Tawil Syndrome?

Where do I find other people with Andersen-Tawil Syndrome?

The Periodic Paralysis Association (www.periodicparalysis.org) has a discussion board that may be helpful in finding other people who experience the periods of muscle weakness (periodic paralysis) that are characteristic of Andersen-Tawil syndrome.

Also, Karen Carr Beihl runs a Facebook page and private Facebook group for those with Andersen tawil syndrome.

Andersen-Tawil syndrome is also listed on Patients Like Me.

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