Andermann syndrome
Organizations
Are there good support groups for Andermann Syndrome?
Popular media sites including Facebook can be great resources for connecting with other families who have children with Andermann Syndrome. There are also online support groups for families with children who have a missing or underdeveloped tissue connecting the left and right sides of the brain (corpus callosum) (https://www.facebook.com/groups/740816569313134/). The University of Maine has an online discussion group and provides information about those with a missing or underdeveloped corpus callosum that can be signed up for at https://umaine.edu/edhd/research/acc/networking-opportunities/. In addition, Muscular Dystrophy Canada has information and support for families with muscular dystrophy including Andermann syndrome.
More Organizations Content
Where do I find other people with Andermann Syndrome?
Where can I find out about other people raising children with Andermann Syndrome?
Where do I find other people with Andermann Syndrome?
Popular media sites including Facebook can be great resources for connecting with other families who have children with Andermann Syndrome. There are also online support groups for families with children who have a missing or underdeveloped tissue connecting the left and right sides of the brain (corpus callosum) (https://www.facebook.com/groups/740816569313134/). Muscular Dystrophy Canada has information and support for families with muscular dystrophy including Andermann syndrome.
Where can I find out about other people raising children with Andermann Syndrome?
Popular media sites including Facebook can be great resources for connecting with other families who have children with Andermann Syndrome (ACCPN). Muscular Dystrophy Canada has information and support for families with muscular dystrophy including Andermann syndrome.
