Is there clinical research going on for Andermann Syndrome?
As of June 2019, there are no clinical trials ongoing for Andermann syndrome. However, there were research studies being conducted to better understand corpus callosum abnormalities. You can learn more about clinical trials and monitor for the start of any trials by visiting clinicaltrials.gov.
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How do I find clinical research in Andermann Syndrome?
Clinical research trials can be found by searching for 'Andermann Syndrome' on www.clinicaltrials.gov.
How do I give money to help families with children with Andermann Syndrome?
While there isn’t an organization specific to Andermann Syndrome, donations can be made to support families with children who have a missing or undeveloped tissue connecting the left and right sides of the brain (corpus callosum) that occurs in most people with Andermann Syndrome. Donations can be made to the National Organization for Disorders of the Corpus Callosum (http://nodcc.org/donate-to-nodcc/).