Amyotrophic lateral sclerosis 1

Healthcare/Doctors

How do I find a center of excellence in Amyotrophic Lateral Sclerosis?

The ALS association has an extensive list of center of excellence for amyotrophic lateral sclerosis: http://webfl.alsa.org/site/PageNavigator/FL_8_Clinics.html

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What specialist doctors should I see with Amyotrophic Lateral Sclerosis?

If I have Amyotrophic Lateral Sclerosis, what should my doctor know about managing the disease?

What specialist doctors should I see with Amyotrophic Lateral Sclerosis?

Because amyotrophic lateral sclerosis (ALS) affects many different body systems, individuals with ALS will typically have a multi-disciplinary care team including a neurologist, pulmonologist, psychologist, social worker and nursing team. Speech, occupational, and physical therapy are also typical for palliative care. Individuals with familial ALS may also have a genetics team caring for them and their family.

If I have Amyotrophic Lateral Sclerosis, what should my doctor know about managing the disease?

Your doctor should be able to rule out other neurodegenerative disorders and know the tests and treatment options available to you. Individuals with ALS will typically have a multi-disciplinary care team including a neurologist, pulmonologist, psychologist, social worker and nursing team. Speech, occupational, and physical therapy are also typical for palliative care. Individuals with familial ALS may also have a genetics team caring for them and their family. New research for ALS is allowing new drugs that can help with the progression of the disease.

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