Amyloidosis, hereditary, transthyretin-related
Is there clinical research happening on hATTR amyloidosis?
ClinicalTrials.gov lists all available clinical trials associated with hATTR amyloidosis. As there are many types of amyloidosis, makes sure you are looking specifically for trials on hATTR amyloidosis. The ClinicalTrials.gov website provides regularly updated information about federally and privately supported clinical trials is a universal source for clinical trials. As of June 2019, there are several studies regarding hATTR. Check the clinicaltrials.gov website for the most up-to-date studies.
- ClinicalTrials.gov website. https://clinicaltrials.gov/
More Clinical Research/Studies Content
How do I find clinical research on hereditary transthyretin amyloidosis?
To learn about ongoing clinical research into hATTR amyloidosis, you can ask a medical specialist in the disorder. This can include genetic counselors and medical geneticists. In the U.S., you can find a genetic counselor near you by searching on the Find a Genetic Counselor website (from the National Society of Genetic Counselors) at http://www.nsgc.org/findageneticcounselor. In the U.S., you can find a medical geneticist near you at medical geneticists. These specialists are excellent sources of information about ongoing clinical trials and can offer information about the pros and cons about participating in such a trial.
Ongoing studies for hATTR amyloidosis can also be found on clinicaltrials.gov, a service of the U.S. National Institutes of Health. In Europe, the EU Clinical Trial Register performs a similar service.
Support groups also have information about ongoing clinical trials as well as information and advice about participating in clinical trials. Support groups for transthyretin amyloidosis include the Amyloidosis Foundation and the Amyloidosis Support Groups. The Amyloidosis Research Consortium is a nonprofit organization dedicated to address critical needs in clinical trials and related research for systemic amyloid diseases.
- ClinicalTrials.gov website. https://clinicaltrials.gov/ct2/home
- EU Clinical Trial Register website. https://www.clinicaltrialsregister.eu/
- The Amyloidosis Foundation website. http://www.amyloidosis.org/
- The Amyloidosis Research Consortium website. http://www.arci.org/
- The Amyloidosis Support Groups website. http://www.amyloidosissupport.org/