Alkaptonuria
Organizations
Are there good support groups for Alkaptonuria?
Support groups for Alkaptonuria include:
- Alkaptonuria Society: http://www.akusociety.org
- Alkaptonuria Society of North America: http://www.akusocietyna.org/index.html
- Children Living with Inherited Metabolic Diseases (CLIMB), United Kingdom at Phone: 0800-652-3181, Email: info.svcs@climb.org.uk, or www.climb.org.uk.
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Where do I find other people with Alkaptonuria?
How do I start a support group for Alkaptonuria?
Where do I find other people with Alkaptonuria?
Find other people with Alkaptonuria at:
- RareConnect: https://www.rareconnect.org/en/community/alkaptonuria-aku
- Patients Like Me: http://www.akusociety.org/patientslikeme
How do I start a support group for Alkaptonuria?
Opportunities for joining others with Alkaptonuria can be accessed through RareConnect and Patients Like Me. RareConnect: https://www.rareconnect.org/en/community/alkaptonuria-aku
Patients Like Me: http://www.akusociety.org/patientslikeme To learn about advocacy and how to organize a support group in your area for others with Alkaptonuria or rare disease, see the Genetic Alliance website at http://www.geneticalliance.org/.
