Alagille syndrome


Are there good support groups for Alagille syndrome?

The Alagille Syndrome Alliance ( is a good place to start if you are looking for support. They host events every three years to help families connect with each other.

The Childhood Liver Disease Research and Education Network (ChiLDREN) ( works with multiple groups to support patients and families and to connect people with rare liver conditions. Visit their website to learn more about the support groups they partner with to see if any are right for you.

We use cookies to ensure that we give you the best experience on our website. By continuing to browse this site, you are agreeing to our use of cookies.

Continue Find out more about our use of cookies and similar technology

This content comes from a hidden element on this page.

The inline option preserves bound JavaScript events and changes, and it puts the content back where it came from when it is closed.

Remember Me