Alagille syndrome

Healthcare/Doctors

How do I find a center of excellence in Alagille syndrome?

The Children’s Hospital of Philadelpphia (CHOP) has an Alagille Syndrome Clinical Care Program dedicated to treating children with Alagille syndrome. This program allows children to see all the specialists they need in one visit. The program also has a strong focus on research into Alagille syndrome.

If Philadelphia is too far for you, contact your local children’s hospital to see if they have recommendations for doctors familiar with Alagille syndrome. The liver center at your local children’s hospital is a good place to start!

http://www.chop.edu/centers-programs/alagille-syndrome-clinical-care-program

References
  • http://www.chop.edu/centers-programs/alagille-syndrome-clinical-care-program
Show More Content Like This

More Healthcare/Doctors Content

What kind of doctors do I need to see if I have Alagille syndrome?

If I have Alagille syndrome, what should my doctor know about managing the disease?

What kind of doctors do I need to see if I have Alagille syndrome?

People with Alagille syndrome typically see many doctors who are experts in different body systems, including:

  • Gastroenterologist (expert in the digestive system and liver)
  • Cardiologist (expert in the heart)
  • Ophthalmologist (expert in the eyes)
  • Nephrologist (expert in the kidneys)
  • Orthopedist (expert in bones)
  • Geneticist (expert in genetics)
References
If I have Alagille syndrome, what should my doctor know about managing the disease?

Your doctor should be familiar with the specialists you need to see (e.g. gastroenterologist, cardiologist, nephrologist, etc.). They should also help you maintain a healthy diet to help you continue to grow and develop properly.

We use cookies to ensure that we give you the best experience on our website. By continuing to browse this site, you are agreeing to our use of cookies.

Continue Find out more about our use of cookies and similar technology

This content comes from a hidden element on this page.

The inline option preserves bound JavaScript events and changes, and it puts the content back where it came from when it is closed.

Remember Me