Are there any centers of excellence in Aicardi syndrome?
As of May 2019, there are no centers of excellence in Aicardi syndrome. One of the best ways to find a doctor familiar with caring for individuals with Aicardi syndrome is to talk with other parents at the Aicardi Syndrome Foundation.
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If my child has Aicardi syndrome, what specialist doctors should they see?
Management of children with Aicardi syndrome is based on their clinical and developmental manifestations and may include a number of medical and therapeutic specialties such as pediatric neurology or epileptology, neurosurgery, ophthalmology, orthopedics, gastroenterology, physical therapy, speech therapy and occupational therapy.