Agammaglobulinemia, x-linked

To learn about ongoing clinical research on X-linked agammaglobulinemia, ask a physician who specializes in the disorder. Genetic counselors and medical geneticists are also excellence sources of information about ongoing clinical trials and can offer advice about the pros and cons about participating in such a trial. A medical geneticist can be found by asking your doctor for a referral or looking on the American College of Medical Geneticists website. Genetic counselors can be found on the National Society of Genetic Counselors website.

Ongoing studies for X-linked agammaglobulinemia can also be found on clinicaltrials.gov, a service of the U.S. National Institutes of Health. In Europe, the EU Clinical Trial Register performs a similar service.

Support groups also have information about ongoing clinical trials as well as information and advice about participating in clinical trials. Support groups for X-linked agammaglobulinemia include the Immune Deficiency Foundation, Jeffrey Modell Foundation/National Primary Immunodeficiency Resource Center, and the International Patient Organisation for Primary Immunodeficiencies.