Adrenoleukodystrophy
Clinical Research/Studies
Is there clinical research going on for X-linked adrenoleukodystrophy?
There are many clinical studies going on to study possible treatments for X-linked adrenoleukodystrophy. Please see: Clinical Trials.gov for a listing of clinical trials and The Starbeam Study for information about a clinical trial investigating gene therapy as a treatment for adrenoleukodystrophy. Many support groups, such as ALD Connect, also contain information about ongoing research and clinical trials.
References
- ALD Connect: Clinical Trials. http://www.aldconnect.org/browse.php
- Clinical Trials.gov Adrenoleukodystrophy https://clinicaltrials.gov/ct2/results?term=adrenoleukodystrophy&Search=Search
- Starbeam Study: About the Study. http://www.starbeamstudy.com/study.php
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How do I find clinical research in X-Linked Adrenoleukodystrophy?
How do I give money to help research in X-linked adrenoleukodystrophy?
How do I find clinical research in X-Linked Adrenoleukodystrophy?
Clinicaltrials.gov has many different studies available if you search for adrenoleukodystrophy. The Star Beam study is also doing work specifically with boys who have cerebral symptoms. Support groups also offer information on ongoing research and clinical trials.
References
- Clinical Trials.gov Adrenoleukodystrophy https://clinicaltrials.gov/ct2/results?term=adrenoleukodystrophy&Search=Search
- Starbeam Study: About the Study. http://www.starbeamstudy.com/study.php
How do I give money to help research in X-linked adrenoleukodystrophy?
Many of the support groups offer money to help with research. For example some of the funds from The Myelin Project and the United Leukodystrophy Foundation go to support scientific research.
