Acyl-coa dehydrogenase, very long-chain, deficiency of

Healthcare/Doctors

How do I find a center of excellence in Very Long-Chain Acyl-Coenzyme A Dehydrogenase Deficiency (VLCADD)?

If your child was diagnosed through newborn screening, the newborn screening program in your state will refer you to a specialist in Very Long-Chain Acyl-Coenzyme A Dehydrogenase Deficiency (VLCADD).

Other lists of specialists treating VLCADD can be found at these websites:

References
Show More Content Like This

More Healthcare/Doctors Content

What specialist doctors should I see for a diagnosis of Very Long-Chain Acyl-Coenzyme A Dehydrogenase Deficiency (VLCADD)?

What specialist doctors should I see for a diagnosis of Very Long-Chain Acyl-Coenzyme A Dehydrogenase Deficiency (VLCADD)?

A person with Very Long-Chain Acyl-Coenzyme A Dehydrogenase Deficiency (VLCADD) should be seen by a doctor called a "medical geneticist", "metabolic physician" or "biochemical geneticist" who usually works with a "metabolic dietitian". These specialists are familiar with VLCADD. If your child has had a positive newborn screening test for VLCADD, the newborn screening program in your state will be able to refer you to a metabolic geneticist and dietitian. A medical geneticist can be found by asking your doctor for a referral or looking on the American College of Medical Geneticists website. If you are looking for a metabolic clinic for treatment in the United States, you can search for the clinic or clinics in your state.

A metabolic dietician can be found through the Genetic Metabolic Dieticians International webpage. A genetic professional can also be found on the Genetic Testing Registry Homepage.

References

We use cookies to ensure that we give you the best experience on our website. By continuing to browse this site, you are agreeing to our use of cookies.

Continue Find out more about our use of cookies and similar technology

This content comes from a hidden element on this page.

The inline option preserves bound JavaScript events and changes, and it puts the content back where it came from when it is closed.

Remember Me