Acyl-coa dehydrogenase, very long-chain, deficiency of
How do I find a center of excellence in Very Long-Chain Acyl-Coenzyme A Dehydrogenase Deficiency (VLCADD)?
If your child was diagnosed through newborn screening, the newborn screening program in your state will refer you to a specialist in Very Long-Chain Acyl-Coenzyme A Dehydrogenase Deficiency (VLCADD).
Other lists of specialists treating VLCADD can be found at these websites:
- American College of Medical Geneticists website
- find a genetic specialists section of the Genetic Testing Registry webpage
- Genetic Metabolic Dieticians International webpage
- for treatment in the United States, you can search for the clinic or clinics in your state.