3-methylglutaconic aciduria, type III

Organizations

Are there good support groups for 3-methylglutaconic aciduria type 3?

There are support groups for people with 3-methylglutaconic aciduria type 3:

  • American Foundation for the Blind (http://www.afb.org/default.aspx)
  • Children Living with Inherited Metabolic Diseases (CLIMB; www.climb.org.uk)
  • Costeff Support Group (Sheba Medical Center, Tel Hashomer 52621, Israel; email: roma40@012.net.il; phone: +9723530 5017; fax: +9723530 2658)
  • Organic Acidemia Association (www.oaanews.org) - a ThinkGenetic Advocacy Partner

General support for people with genetic diseases can be found at:

References
  • www.climb.org.uk
  • www.oaanews.org
  • http://www.afb.org/default.aspx
  • http://www.geneticalliance.org/
  • http://globalgenes.org/
  • http://www.rarediseases.org
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Where do I find other people with 3-methylglutaconic aciduria type 3?

Where do I find other people with 3-methylglutaconic aciduria type 3?

The Organic Acidemia Association has a "Parent Connection" service where you can fill out a questionnaire and have your information shared with the OAA Family Roster. You can then connect with other parents in similar situations.

http://www.oaanews.org/connection.htm

References
  • http://www.oaanews.org/connection.htm

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