3-methylglutaconic aciduria, type III
Are there good support groups for 3-methylglutaconic aciduria type 3?
There are support groups for people with 3-methylglutaconic aciduria type 3:
- American Foundation for the Blind (http://www.afb.org/default.aspx)
- Children Living with Inherited Metabolic Diseases (CLIMB; www.climb.org.uk)
- Costeff Support Group (Sheba Medical Center, Tel Hashomer 52621, Israel; email: firstname.lastname@example.org; phone: +9723530 5017; fax: +9723530 2658)
- Organic Acidemia Association (www.oaanews.org) - a ThinkGenetic Advocacy Partner
General support for people with genetic diseases can be found at:
More Organizations Content
Where do I find other people with 3-methylglutaconic aciduria type 3?
The Organic Acidemia Association has a "Parent Connection" service where you can fill out a questionnaire and have your information shared with the OAA Family Roster. You can then connect with other parents in similar situations.