3-methylcrotonyl-coa carboxylase deficiency (3-MCC)
Organizations
Are there good support groups for 3-Methylcrotonyl-CoA Carboxylase Deficiency (3-MCC) ?
The Organic Acidemia Association (a ThinkGenetic Advocacy Partner) is the main support group for people who have 3-Methylcrotonyl-CoA Carboxylase (3-MCC) deficiency.
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Where do I find other people with 3-Methylcrotonyl-CoA Carboxylase Deficiency (3-MCC)?
How do I start a support group for 3-Methylcrotonyl-CoA Carboxylase Deficiency (3-MCC)?
Where do I find other people with 3-Methylcrotonyl-CoA Carboxylase Deficiency (3-MCC)?
You may be able to find other people who have 3-Methylcrotonyl-CoA Carboxylase (3-MCC) deficiency through the Organic Acidemia Association, a ThinkGenetic Advocacy Partner, at http://www.oaanews.org/. You can also speak with your biochemical geneticist to meet other people with 3-MCC deficiency.
How do I start a support group for 3-Methylcrotonyl-CoA Carboxylase Deficiency (3-MCC)?
Starting a support group is a great idea and a great way to help families and individuals experiencing the same issues and symptoms of the condition. If you are interested in starting a support group of your own, a good place to start is by speaking to the support groups and organizations already founded. They likely can provide information about people near you that are interested in creating a support group.
- Organic Acidemia Association: http://www.oaanews.org/
- Climb- National Information Centre for Metabolic Diseases: http://www.climb.org.uk/
- Genetic Disorders UK: http://www.geneticdisordersuk.org/
- The UK Strategy for Rare Diseases: http://urddad-foundation.org.uk/
