3-hydroxy-3-methylglutaric aciduria (HMG)
Organizations
Are there good support groups for 3-Hydroxy-3-Methylglutaric Aciduria (HMG)?
There are several organizations that support and promote the education, management, diagnosis and treatment of metabolic conditions including: The Organic Acidemia Association, The North American Metabolic Academy (NAMA), Save Babies Through Screening or the Society for Inherited Metabolic Disorders.
Some families have also connected with one another through facebook or other social media websites.
References
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How do I start a support group for 3-Hydroxy-3-Methylglutaric Aciduria (HMG)?
How do I start a support group for 3-Hydroxy-3-Methylglutaric Aciduria (HMG)?
To start or locate a support group in your area, try contacting the Organic Acidemia Association.
