2,4-dienoyl-coa reductase deficiency

Organizations

Are there good support groups for 2,4-dienyl-CoA reductase deficiency?

2,4-dienyl-CoA reductase deficiency (DECRD) is classified as both a fatty acid oxidation disorder and a mitochondrial disorder. There are support groups or organizations for both groups of these disorders that provide support, information, advice, guidance, referrals to physicians and medical centers, and up-to-date information on research and treatments. There is the FOD Family Support Group and the United Mitochondrial Diseases Foundation.

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Where do I find other people with 2,4-dienyl-CoA reductase deficiency?

Where do I find other people with 2,4-dienyl-CoA reductase deficiency?

Support groups are organizations that provide support, information, advice, referrals to physicians and medical centers, and up-to-date information on research and treatments. 2,4-dienyl-CoA reductase deficiency (DE RED) is classified as both a fatty acid oxidation disorder and a mitochondrial disorder. There are support groups or organizations for both groups of these disorders: the FOD Family Support Group and the United Mitochondrial Diseases Foundation.

There are also online communities for rare disorders such as RareConnect, RareShare, or Inspire, which allow individuals and parents to share experiences and advice about dealing with rare disorders.

References

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